We Were Given A Gift...

One year ago today my life permanently changed. I no longer had my husband and the father of my children with me on earth. His broken body couldn't function here anymore and he went on with another chapter of life. The day Jonas died was the worst day of my life. It feels foggy, yet clear at the same time. I can't recall some things, but others will stay in my mind forever. Maybe one day I will be able to write about that day, but for now I still keep it hidden in my mind. Death was not a peaceful experience for me. It was horror and chaos. Jonas dying that day was not expected. Some people seem to think that I knew it was coming because of how sick he had been. I had thoughts that he might not make it for very many more months, especially after the doctors told us Jonas needed a liver transplant in order to survive.  I don't think I ever believed it. How could I accept the idea that my husband was going to die? To accept it would mean I was giving up hope. I never wanted to loose hope.

After that painful, horrible, rotten day, my boys and I had to figure out what our new normal was. Everything had changed and nothing seemed fair or right. I started seeing a counselor about a month after Jonas died. My mom was the one who suggested I go talk to someone and I will be forever grateful that I did. She helped me cope with some of the hardest days and nights I had ever experienced. Loosing someone you love and care for deeply brings an actual physical pain to your heart. I remember some nights crying and sobbing and actually feeling that pain. A broken heart is not a figure of speech. It feels exactly how it sounds. It hurts!

I had spent the last three months caring for Jonas. I was his nurse, his wife, his support, the mother of his children, and the one who had to be strong. I had to prepare his TPN every day, make sure I was home at certain times to give him his medications, figure out what to feed him, and be available in the evenings to hook him up to his IV antibiotics. It was exhausting and stressful, but I was so busy doing so many things I didn't notice. I didn't notice until I didn't have to do it anymore. One day I was everything to someone and the next day I was nothing. I was no longer needed. What was I going to do with all this time? I missed doing my job. I wanted to be a nurse and a wife again. I wanted Jonas back. I wanted all these things, but I couldn't have any of them. How could I possibly go on with life?

The answer was simple. My children. My three handsome boys. I am so lucky and blessed to be the mother of Sam, Ben, and Jack. God knew I would not be able to do this alone. He knew I needed three strong personalities to keep me jumping and busy everyday. God knew I would let myself wither away in bed if I could. I was sent these three amazing boys to help me. They are the reason I get up every morning and they are the reason I can still smile. They have no idea how much I need them. I hope they realize one day that they saved me.

During one of my sessions with my counselor I was talking about the time we spent at the Mayo Clinic in 2008. I was telling her that the doctors were calling him a medical mystery and that they were having a hard time knowing how to help him. I don't think I mentioned this in my medical history post, but one of the doctors told us that starving bodies will take nutrition out of every muscle and bone it can. The last place it takes nutrition from is your temples. Joe's temples had been sunk in at one of his appointments and when the doctor saw that he really didn't think he was going to make it. Of course, he didn't tell us that at the time, but only after Joe had started doing better. There were two doctors that had told us (after he was doing better) that they didn't think he was going make it and another doctor at the Mayo Hospital that said it was in God's hands. I am sure there were many more doctors that were thinking the same thing.

After I finished telling my counselor this she looked at me and said, "you were given a gift." I just looked at her not really understanding what she meant. "Heavenly Father knew you were not ready to let him go in 2008." I was thinking in my head...I am not ready in 2011 either! But as we sat and talked some more I started to realize that she was right. (Not that I was ready in 2011, but that we had been given a gift.) We were allowed to keep Jonas in our lives for a couple more years. Jonas was here for the birth of our third son, we were able to go on family vacations and family outings, we were able to have two more years to make memories. We had two more years to learn, grow, and become a stronger family. The strain on a marriage when someone is chronically ill is tough. The stress since mid 2007 was taking its toll on us and we had grown apart. By the summer of 2008 we were doing much better. We were finally able to work on "us" and had fallen in love all over again. It's very true that you have to continually work on your marriage to make it work. I think in every marriage there will be times when you grow apart, but you have to keep working on the "us" part so that you have the wonderful experience of falling in love again and again with your spouse.

Now, had I known the next two years were a gift I would have done things SO MUCH different, but, you know...we aren't supposed to go there. So I try not to. Things really were good between me and Joe. Better than good. They were as perfect as they could have been. We loved each other and we loved our children. Yes, I wish we would have had the "if I ever die" talk and I wish I would have video recorded him more often. I wish he would have had the chance to write letters to our boys and let them know how much he loves them and how proud he was of them. He loved being their daddy. I wished I would have known (or realized) that his time was almost gone and that I would have had a chance to tell him once more how much I love and appreciate him. But I try to remain grateful for the years I had with him. I try to stay positive for my boys so that they can have a happy childhood. I know I will see Jonas again and I dream about that awesome reunion we will have one day. We are so blessed to have a loving Heavenly Father. He blessed us with our Joe for two extra years. I will forever treasure the memories we made. When I am having one of those hard nights I will try and remember that because I am loved, I was given a gift.

Joe & Sam 2003

Joe & Ben 2005

Joe & Jack 2008